Special Issue: Patient-led Research and Advocacy Effort

This special issue emphasizes the crucial role of children, and their families play in helping to co-produce and mobilize knowledge to deal with the grim reality of childhood cancer. By illuminating the growing influence of patient representatives and patient groups on research methods, advocacy, and policy, the special issue aims to encourage the childhood cancer community to further explore, partner and foster that influence.

Type of project: Research
Sector: Academic
Lead organization: Led by patient advocacy groups, parent and survivor organizations from Australia, Chile, Ecuador, India, New Zealand, and the United Kingdom
Link: https://onlinelibrary.wiley.com/toc/25738348/2022/5/6
Video link:

Relevant SDG’s

IPA SDG – Goal No 3 – Good Health and well-beingIPA SDG – Goal No 17 – Partnerships for the Goals